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Usher syndrome

As explained in About UsherLife, we do not provide support, however, this FAQs information will help you on how to get support for yourself or for your Usher / deafblind children.

  • Are there major deafblind organisations in the UK?
    There are two:
    Sense and Deafblind UK. In Scotland: Sense Scotland and Deafblind Scotland.
     
  • Does Sense have an Usher Team?
    Yes,
    email them for enquiries.
     
  • I would like information and publications on Usher syndrome and deafblindness. Where do I get them?
    Sense has the
    Usher Publications and Sense Library webpages.
     
  • I have difficulties in getting around such as going to shops, travelling and visiting places, etc because of my Usher / deafblindness. Is there support that I can get to help me?
    There is a law in the UK that says your local social services must provide personnel support for your needs. It is called Deafblind Guidance. See
    here for more information.
     
  • I'm trying to find communicator-guides, personal assistants or Deafblind interpreters in my area, so is there a directory for them?
    Try Sense's
    Deafblind Directory which is an online database of communicator-guides, personal assistants, deafblind interpreters, etc that you can search and book directly.


© Nick Sturley / UsherLiffe 2005-10. All Rights Reserved.
 

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